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People living with sickle cell disease spend more time in hospital therefore health care service is among the themes that SCAP is looking at to highlight the gaps that need to be filled to make a difference.

SCAP interviewed 10 individuals with sickle cell all these individuals stated that their experience is always challenging when they go to A&E. If health professionals get it right the first time when a sickle cell service user attends A&E this contribute on shorter stay whilst in hospital. Sickle cell patients do not want special treatment when they attend A&E they just want to be treated as normal just like any other patient. Sickle cell patients should not be judged by health care professionals when they request for pain relief.

SCAP explores how this plays out in A&E when a doctor innocently asks how long the sickle cell patient has had it for and how this gets the sickle cell patient very agitated. We all need to understand that sickle cell is an invisible disability, and this can be challenging for the individuals living with it. This is then followed by a nurse who fails to acknowledge the fact that Malik is in debilitating pain and all he can think of his pain relief. Look at the shift in Malik’s body language when the nurse returns with a different attitude.

There are barriers that are making it impossible for sickle cell patients to receive the care they need while in A&E. If these barriers are removed, we move a step forward towards making a difference to the lives of people living with sickle cell.


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